Narcolepsy

My 11 year old has narcolepsy and cataplexy. He took a trip to the neurologist this morning. This is a trip we make several times a year, but after every visit I am reminded of the fact that his life is forever changed. His story will look a little differently than I thought it would. He has been amazing through this journey, and some days I think he has handled it better than I have. So I would like to highlight Andrew in my slice today, and share the blog he has created to spread awareness and share his story. He is a pretty sweet slice!

If you want to get to know one of my heros, check out
http://www.narcolepsykid.com

20140311-203013.jpg

Advertisements

3 Comments

Filed under My boys, narcolepsy, SOL

3 responses to “Narcolepsy

  1. Wow! Thanks for sharing your son’s experience. His attitude is amazing. I especially liked his best/worst list.

  2. So glad you shared this — love his blog; his resilience shines through!

  3. I have Narcolepsy too. Are you in any support groups?

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s